From Baby to Blood Clotting Disorder???

When I say it has been a week filled with ups and downs it is not an understatement or where I'm just feeling "a case of the Mondays." I started out the week feeling elated. It was my 36th birthday, we were away on a nice vacation and I got the present I was waiting for: three positive pregnancy tests. On Monday, the blood test confirmed it: I was pregnant and thank the Lord my HCG levels were good. I was starting out at 36 which was way higher than the last time. I felt like this baby was strong. This one was going to make it! I just needed my HCG levels to keep doubling. Wednesday was my next scheduled test. I woke up feeling awful. Was I catching something going around school? Was I just worried about the test? I chalked it up to that. I had the usual struggle of getting blood from my veins at the fertility center and got lovely bandages for both hands. Then at 1 pm while I was on cafeteria duty, the call where all the hope fell out from under me came...again... My numbers dropped to 15. I was miscarrying...again. Really? Oh and my flu like symptoms were the sign it was happening. That was different than the last time. This means that I'm a multiple miscarrier. Not a title I wanted to be crowned with. Just as I was wondering why my body continues to kill my babies, the nurse provided me with a potential answer. They think I have a blood clotting disorder. And although I explained we were done with IVF, they want to do a thorough work up because if I have this it can lead to more significant problems like stroke, heart attack, deep vein thrombosis and pulmonary embolism. After doing my research, the name of the disorder is Thrombophilia and the trusty Internet defines it as an abnormality of blood coagulation. It can be hereditary, acquired or mixed. It causes multiple miscarriages and can cause stillborn babies. After reading the symptoms, it makes sense as something I have. Different things that have happened in my life: shortness of breath, sharp pains in my chest out of nowhere, unexplained swelling or pain, increased heart palpations, almost dying during both egg retrieval surgeries all finally may make sense. Their not just my unique idiosyncrasies. On the one hand it's comforting in a way to have a potential answer. However, on the other hand it leaves me struggling to make peace with the following thoughts: this disorder means that it's highly unlikely for me to carry my own child successfully ever. That realization setting in really takes my breath away figuratively. It also means I could have a pulmonary embolism (blood clot in the lungs which can be life threatening) any minute. Of course they can't use any of the gallons of blood samples they already have in the lab. So it's once again a waiting game to see when my HCG drops to zero, you know when the baby has completely disintegrated. Then I will get a full work up and hopefully a treatment that will help me "live" with this disorder. As I'm waiting I sure have enough reading to do on adoption: traditional costs between $41,000-47,000 and agency assisted costs between $31,000-34,000. Yikes! Time to start filling out grant applications. 

While I'm waiting, reading oh and of course praying, has anyone out there had any experience or know someone whose had thrombophilia?